Rare Conditions

Services and Support » Early Support » Rare Conditions

This resource is for parent carers with children who have been diagnosed with a rare condition or who it is suspected have a rare condition.
In this resource you will find information on:

  • what a rare condition is
  • getting a diagnosis for your child
  • getting information on your child’s rare condition
  • working with practitioners involved in your child’s care
  • who can help
  • tips and strategies
  • where you can get further information and support

Rare condition